muninnhuginn: (Default)
Decided I really couldn't stay at hoe twiddling my thumbs any longer. Going back (starting afresh?) 3 days a week, from next Tuesday. It's a year and feels quite daunting. Leave it any longer and I won't be back at all.

Discussions round this have been painless. Yes, if I ask for a loo to be made properly accessible (not just wheelchair accessible), it will be done.

My desk has been left undisturbed, a bit shrine-like, tho' I was rather disappointed that there were no flowers.
muninnhuginn: (Default)
One year old today.

There may be cake later.

Walked

Mar. 20th, 2025 05:26 pm
muninnhuginn: (Default)
From home to cancer ward for treatment. Roughly 4 miles. Took me five minutes longer than I expected (1 hr 15 rather than 1 hr 10). Hot. Sunny. BP was 112.
muninnhuginn: (Default)
Arrived this a.m. Not by post, but courier. Who rang first to check there'd be someone here.
I've just got rid of alll of its effects and I get to start again.... Heigh ho!

Empty Box

Jan. 17th, 2025 03:26 pm
muninnhuginn: (Default)
No meds on offer after yeaterday's infusion. It'll be in the post.
So currently I have an empty box:

Empty cardboard carton for a precription medicine
muninnhuginn: (Default)
2023 I had the worst year of my life.

It marched to the beat of get-up, work, cook, sleep. Day in, day out. Rinse and repeat.

I was so tired. My lower back ached. My digestive system went from bullet-proof to... well, crap. And did I mention how tired I was? Every single effort of a day.

I had no energy for knitting, for reading, for gaming, for learning. For acquiring new hens. For getting the beehive bought and built--and a colony settled in. A waste of a year.

I blamed all this on the ketfuffle of moving the Aged P down to live next door to us--and on supporting them when they broke their leg. I blamed it on stress at work, growing the team, getting a new boss, taking on more tasks, reorganisation. I blamed it on aging. I blamed it on the world not having reconfigured itself to accommodate COVID-19 and bird 'flu.

I felt hopelessly miserable.

2024 I got the explanation and the treatment.

The process hasn't gone entirely smoothly. The stoma, the lymph node not removed, needing a blood transfusion: I could have done without those as part of the surgery. The constipation, the loss of my eyelashes and eyebrows, the pervasive taste of burnt tree trunk, the occasionally nosebleed: could have done without all those side effects. I would have loved not to have missed Eastercon, worldcon, A New Day.

The prognosis wasn't great to start with, but the surgery did remove most of the nastiness, and the adjuvent chemotherapy did the rest. A sequence of fortuitous dominoes fell in the right configuration to make maintenance treatment a good option. The end hasn't closed in as much as it might. So here i am, getting used to a new normal, which includes daily tablets, infusions every three weeks, and a chance to reconfigure myself to accommodate this regimen.

Along the way, I've read, knitted, and embroidered my way through treatment sessions. I've learned (and failed to remember) the names of numerous drugs some of which may be repurposed as character names in TTRPGs. I've found the back way into the day treatment ward and learned the route from the rear of Addenbrookes to the secret oasis of Nine Wells. I've got OK at injecting myself with drugs and dealing with the self-care of an ostomy. Above all, although it was my body's cells that failed me, I've learned to feel confident in this bag of meat that, in the face of failure, reconfigures, heals, bounces back.

I've felt, mostly, grounded, contented. Happy, even.

2025 I can begin to plan again. I start organising going back to work. I attempt to get to Eastercon. There will be more knitting and weaving, reading, gaming. I will pick out new hens.

There may be bees.

Happy New Year!

Profile

muninnhuginn: (Default)
muninnhuginn

June 2025

S M T W T F S
1 234567
891011121314
15161718192021
22232425262728
2930     

Syndicate

RSS Atom

Most Popular Tags

Style Credit

Expand Cut Tags

No cut tags
Page generated Jul. 4th, 2025 05:24 pm
Powered by Dreamwidth Studios